MPN Forum Live
MPN Forum Live is the only podcast designed exclusively for patients and caregivers of myeloproliferative neoplasms, also known as MPNs. MPNs include the following blood cancers, Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. MPN Forum Live brings together MPN patients from around the World to share their stories of living life as MPN patients. It’s the home to MPN patient storytelling. The MPN community is a band of brothers and sisters standing together; united to support each other while locked in the fight of their lives. You want to talk about failure not being an option? This is the very definition of failure not being an option. MPN Patients are not just warriors, they are also heroes who often struggle to find the mental fortitude to keep ongoing. Yet somehow, they find the strength to keep moving forward. From the dawn of time, human beings have shared a deep history of bonding with each other through the form of storytelling. MPN heroes all have fascinating and engaging stories to share. These stories provide MPN patients and their families with a unique experience not easily replicated on traditional social platforms. MPN Forum Live serves as an archival of stories for the families of MPN patients for download by family members and saved forever. Besides patient stories, from time to time, we will feature guest hosts, caregivers, hematologists and experts who can provide insight into medical breakthroughs and the benefits of exercise and a well-balanced diet.
Podcasting since 2022 • 9 episodes
MPN Forum Live
Latest Episodes
Episode 9 | Interview with Dr. Hugh Young Rienhoff
Today’s guest is Dr. Hugh Young Rienhoff, Jr., a San Francisco Bay Area clinical physician-scientist and entrepreneur. He serves as the CEO and a Founder of Imago BioSciences, a clinical-stage biopharmaceutical company focused on developing nov...
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38:05
Episode 8 | Interview with Nikki
Today’s guest is Nikki. An ET MPN Patient who’s been kind enough to share her journey with the MPN Forum Live community. While many of us have the same MPN Nikki has her own unique experiences, trials and tribulations. Her story is inspiring an...
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44:52
Episode 7 | Interview with Krisstina Gowin
Today I had the pleasure of interviewing Krisstina Gowin Assistant Professor of Medicine at the University of Arizona for our MPN Forum Live Podcast. I heard her speak this year at the Hutch Center Seattle Patient Conference and she delivered a...
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55:12
Episode 6 | Interview with Czerny Cohen Clinical Operations for Massive BIO
On todays podcast I am joined by Czerny Cohen VO of Clinical Operations for Massive Bio as well as Fiona Evans lead patient advocate for Massive BIO. You may have not heard of Massive Bio but you will be hearing a lot about them. They have crea...
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1:34:40